Jennifer Siebenaler, Client Relationship Manager
American Brain Tumor Association
The Mission of the American Brain Tumor Association – Advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research. Founded in 1973, the American Brain Tumor Association (ABTA) was the first national advocacy organization committed to funding brain tumor research and providing information and education on all tumor types and all age groups. For almost 45 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.
I organize a Family Team for their BT5K in Chicago. Our Team name is Team Born to Run, in memory of my mother who loved Bruce Springsteen.
Team Page – http://hope.abta.org/goto/Born2run
Back in October of 2014 my mom had what the doctors thought was a hemorrhagic stroke, and she lost all movement of the left side of her body. The doctors treated her for the stroke with intense rehab, and she progressed until March of 2015 when it was discovered that she didn’t really have a hemorrhagic stroke, she had a large malignant brain tumor that was masking itself as a bleed. After two surgeries, multiple rounds of chemo and radiation and daily inpatient and outpatient therapy over the course of a year, the tumor finally won and my mother passed away on April 12th 2016.
We started walking in the BT5K when she was diagnosed and she actually was able to participate with us one year. We now walk in her memory. Over the past 4 years, we have raised over $23,000 to help fund the research and education of brain tumors through the ABTA.